Monday, March 25, 2013

Welcome to the new home of the Big Sis in Burgundy.

For those who were reading my columns in The Myeloma Beacon over the last two years, thank you for joining me in this new part of cyberspace.

I'd like to begin by expressing my gratitude to The Myeloma Beacon for all that publication does to provide information for those of us in the fight against MM.  I was thankful to have that forum to share my family's journey, for whatever help it might provide to others.

Since my sister Deana has been in remission for over a year (and we are so very thankful for that) there is less to report, especially in any regular column cycle.  In addition, it is understandable that the Beacon does not allow for mentioning of specific MM organizations, doctors, etc.  Much of what I would like to share now includes references to my work with the MMRF and my outreach to various entities as we work to advance a cure.  The blog platform will allow for that, and thus, will hopefully enable some of you to lend your voices and support to these endeavors.

For those interested specifically in Deana, she had an appointment with Dr. Agha on March 18th.  Her numbers are all looking good, with her hemo and IgA proteins in the normal range.  This is something I do not take for granted.

More to come soon, but in the meantime, all of us at Team Beat the Hell Outta Multiple Myeloma wish you the very best.